BIND Association Membership

The BIND Association is committed to improving the characterisation, diagnosis, and treatment of brain involvement in dystrophinopathies. We aim to unite leading institutions from across Europe and beyond to tackle these challenges through research excellence, clinical innovation, policy influence, and education.

Join us today, don’t miss out!

By joining the BIND Association, your institution will become part of a global, multidisciplinary effort to transform patient outcomes and advance scientific understanding. You will amplify your impact, strengthen collaborations, and help shape the future of research and care in brain involvement in dystrophinopathies.

Together, we can deliver the breakthroughs that patients and families deserve.

Objectives of members

Member organisations/institutions should contribute to the mission of the Association being: to improve the characterisation and diagnosis of brain involvement in Dystrophinopathies, as well as the treatment options for these comorbidities. They are committed to positively promote research, optimal care, knowledge, and education regarding brain involvement in Dystrophinopathies, Duchenne and/or Becker Muscular Dystrophy (DMD/BMD).

Membership Fee

The height of the membership fee is based on size of the institution and type of organisation.

Institution with more than 3 people involved in BIND activities – annual membership fee of €1,000

Institution with 3 or less people involved in BIND activities – annual membership fee €500

Patient Organisations – annual membership fee €250

Business form

The organisation should have a not-for-profit legal constitution.

Statement of Activities

Each participating organisation will produce an annual summary of its activities

and engagement in line with the objectives. A template will be provided.